Information Automatically Logged

We use your IP address to help diagnose problems with our server and to administer our Web site. Your IP address is also used to gather broad demographic information. This logged information is used by NDRF to help determine the audience that is viewing our site, and to help us in determining changes to our site.

Cookies

Our Site uses cookies to deliver content specific to your interests. We also use cookies to save your password when visiting our discussion area so you don't have to re-enter it each time you visit our site, and for other purposes. Cookies may also be used by software designed to track statistical information on the number and type of visitors that use our website. The cookies are not shared with any other organization unless a  agreement has been put in place to protect the privacy of all information that would be gathered to provide analysis of our site.

Advertisers

NDRF may does not use any outside ad company to display ads on our site. 

Registration Forms

Our site's registration form requires users to give us contact information (like their name, email, and postal address), financial information (like their bank account or credit card numbers), unique identifiers (like their social security number), and demographic information (like their zip code, age, or income level).

Contact information from the registration forms is used to ship or mail information, brochures and merchandise that is either provided by NDRF at no charge, or in recognition of donations made to NDRF, or is purchased from NDRF. This information is also used to mail or ship information about our foundation, and to get in touch with the registrant  when necessary. The registrant's contact information is not used to share with other companies who may want to contact our web site users, and for other purposes. 

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Financial information that is collected is used to bill the user for products and services.

Unique identifiers (such as social security numbers) are collected from Web site visitors for use as account numbers in our record system.

Demographic and profile data is also collected at our site.
This information is shared with advertisers, other support or research groups, sponsors and potential sponsors on an aggregate basis. No individual information is provided to any group or organization. We use this data to tailor our visitor's experience at our site showing them content that we think they might be interested in, and displaying the content according to their preferences. 

Individuals that enroll in the NDRF support network may, at their choice,  have their contact information disclosed to other members of the support group and / or have contact information posted on our web site listing.  Users may opt-out of any support network listings or receiving future mailings; see the choice/opt-out section below.

Order Forms

Our site uses an order form for individuals to request information, products, and services. We collect contact information (like their email address), financial information (like their account or credit card numbers), unique identifiers (like their social security number), and demographic information (like their zip code, age, or income level).

Contact information from the order forms is used to ship purchases, and information about our foundation.. The individual's contact information is also used to get in touch with the visitor when necessary.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Financial information that is collected is used to bill the user for products and services.

Unique identifiers (such as social security numbers) are collected from Web site visitors for use as account numbers in our record system.

Demographic and profile data is also collected at our site.
This information is shared with advertisers, other support or research groups, sponsors and potential sponsors on an aggregate basis. No individual information is provided to any group or organization. We use this data to tailor our visitor's experience at our site showing them content that we think they might be interested in, and displaying the content according to their preferences. 

Surveys

Our online surveys ask visitors for contact information (like email address), financial information (like account or credit card numbers), unique identifiers (like social security number), and demographic information (like zip code, age, or income level).

Contact information from the surveys is used to ship purchases, information about our company, and to get in touch with the visitor when necessary. The registrant's contact information is not used to share with other companies who may want to contact our visitors.  

Surveys that are completed to gather information for scientific research by institutions that NDRF is working in conjunction with, will contain a descriptive disclosure, and users will not be required to provide contact information.  With the surveys respondents permission, such information from the survey will be shared only with the research facility listed on our survey.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Financial information that is collected is used to bill the user for products and services.

Unique identifiers (such as social security numbers) are collected from Web site visitors for use as account numbers in our record system.

Demographic and profile data is also collected at our site.
This information is shared with advertisers on an aggregate basis. We use this data to tailor our visitor's experience at our site showing them content that we think they might be interested in, and displaying the content according to their preferences. 

External Links

This site contains links to other sites. National Dysautonomia Research Foundation (NDRF) is not responsible for the privacy practices or the content of such Web sites.

Special Relationships

NDRF does not have any special relationships or other agreements.  All information collected by NDRF on this site remains the sole property of NDRF.

Public Forums

This site makes chat rooms, forums, message boards, and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.

Security

This site has security measures in place to protect the loss, misuse, and alteration of the information under our control. The site is controlled on a server with security measures in place and access to the site is restricted to NDRF employees and officers and their designees.  No public access is available for any individual data collected from our registrants or users.

Children's Guidelines

We care about children and understand that they have special privacy needs. Therefore, we have adopted the following privacy policy regarding children:

1. We will NOT collect, use, or distribute to third parties personally identifiable information without prior verifiable parental consent.
2. We will NOT give the child access to unmonitored chat rooms, message boards, email accounts, or other services that would give the child the ability to publicly post or otherwise distribute personally identifiable information without prior verifiable parental consent
3. When verifiable parental consent is not obtained, we will only use the online contact information (such as email) to:
   1. Respond directly to the child's request on a one-time basis and not use that information to re-contact the child for other purposes.
   2. Request the name or online contact information of a parent for the purpose of obtaining verifiable parental consent or providing parental notification.
   3. Respond more than once directly to a specific request from a child (such as in the case where a child requests a newsletter subscription) and not used to re-contact the child for other purposes. We will use our best efforts to provide parental notification, which will include the nature and intended use as well as an opportunity for the parent to prevent the use of the information and participation in the activity.
4. We will NOT entice the child to divulge more information than is needed to participate in any activity, game, or service.
5. We will provide the parent a description of the specific types of a personally identifiable information collected from their child upon request. We will allow the parent to refuse further use or future online collection of personally identifiable information and provide a way for a parent to obtain any personally identifiable information collected from their child.
6. We will provide notice to children in age appropriate terms of what personally identifiable information is to be collected.
7. We will NOT provide any links to Web sites that are unsuitable for children.
8. We will encourage children to get their parent's permission before sharing personal information online.

Choice/Opt-Out

Our site provides users the opportunity to opt-out of receiving promotional/marketing information from us .

1. You can send email to
2. You can send mail to the following postal address:
   PO Box 301, Red Wing, MN 55066
3. You can call the following telephone number: (651) 267-0525

Data Quality/Access

This site gives users the following options for changing and modifying information previously provided:

1. You can send email to
2. You can send mail to the following postal address:
   PO Box 301, Red Wing, MN 55066
3. You can call the following telephone number: (651) 267-0525